BALTIMORE — Jill Pelovitz depends on an army of in-home nurses to keep her teenage daughter alive.
Fourteen-year-old Nadiya suffers from a rare genetic disorder that causes life-threatening seizures, breathing problems and other complications. The teenager, who needs help with basic life skills such as dressing and walking, requires constant monitoring in case she has a seizure, especially at night when she is sleeping in their Severn, Md., home.
But finding nurses to assist families who have children with disabilities and other relatives at home can be difficult, largely because such nurses aren’t paid enough in Maryland or even as much as in neighboring states, according to the families and companies that place nurses. They are pushing to increase how much the nurses are reimbursed under Maryland’s Medicaid program, which covers most of the costs of at-home nursing care for those with disabilities.